Recently Benefitz, the publishers of Channel Magazine assisted Ros Capper with printing this very special book she has produced. The Constellation Drive company prints a number of books for self-publishers and publishing companies alike. 'The Accidental Carer’ was written by Ros after caring for her beloved late husband Mike, when he was diagnosed with cancer. Ros has taken her first-hand experience and turned it into a roadmap for others.
THERE is no right or wrong way to care for someone given an end-of-life or uncertain diagnosis, but this common experience can be steeped in such mystery people simply don’t know how to cope.
Palliative care is care that gives comfort – it does not cure. If the person you are caring for has an illness with an uncertain future, you may be called a ‘palliative carer’ by those in the medical system and likely, feel woefully underprepared.
When her husband was diagnosed with cancer, Ros spent three years caring for him, supported by friends, family and health professionals. It was only after Mike died that she realised how little first-hand guidance was available to her and others. So, being the philanthropic and intrepid woman that she is, Ros decided to write a book and create a website resource www.accidentalcarer.com, to help fill the void and support others.
“Ros is a remarkable woman. Most of us after going through a journey like hers would not have the energy or commitment to create a resource for the benefit of others. But she has, for which I am extremely grateful, as I am sure you will be too. It has truly been a privilege for our team to support her and this project,” said Professor Merryn Gott Director, Te Arai Palliative Care and End of Life Research Group, University of Auckland.
“The lack of information written by home-based palliative carers intrigued me. What I at first thought was a gap I soon realised was a chasm, hidden in plain sight.”
Ros became a co-researcher with the University of Auckland Te Arai Palliative Care and End of Life Research group, who gave their full support to the research and writing of The Accidental Carer.
Ros said, “So as far as I am aware, this guide, designed to shine a light on the choices made by palliative carers at home, is the first of its kind in New Zealand. To everyone who reads this guide, I genuinely hope it inspires you to do your best – that is all we as carers can do.
“Just as importantly, I hope it encourages you to reach out for help – palliative care is not something to do alone at home.”
The Accidental Carer features the stories of five family groups of home-based palliative carers (including Ros), whose stories offer comfort to others as they undergo emotional and physical challenges. The potential for burn out is high, as carers experience a mother-load of uncertainty, grief and exhaustion. Families in this book also share the gifts they found amidst these.
“Sharing stories is an age-old way of making meaning, being inspired and strengthening our spirits to carry on,” said Ros.
With a clear and kind voice, The Accidental Carer gives practical advice on all aspects of end of life management ranging from medical appointments and communication to building a support network, novel ways to enlist support and learn resilience.
The Accidental Carer: Published by Reinventors, May 1, 2017; RRP $24.99 and printed on the North Shore by Benefitz.
For more information visit: www.accidentalcarer.com
ABOUT BENEFITZ BOOK PRINTING
With the installation of three key pieces of technology, Benefitz is making it realistic and affordable for publishers and writers to print their books right here in New Zealand. These machines are JetSX B2 Inkjet Printing Press, Horizon PUR Perfect Binder and Horizon Hard Case Book Binder. They were installed at the Benefitz plant on the North Shore. For more info contact Kent Bowyer-Sidwell: firstname.lastname@example.org or visit: http://www.benefitz.co.nz/services/book-printing-self-publishing